Helping Someone with Schizophrenia
Overcoming Challenges While Taking Care of Yourself
The love and support of family plays an important role in schizophrenia treatment. If someone close to you has schizophrenia, you can make a huge difference by helping that person find the right treatment, cope with symptoms, and build a fulfilling life. Dealing with a loved one’s schizophrenia can be tough, but by taking care of yourself and drawing on others, you can help your loved one on the road to recovery without losing sight of your own hopes and dreams.
Schizophrenia and the family: How to help your loved one
If a loved one has schizophrenia, you may be struggling with any number of difficult emotions, including fear, guilt, anger, and frustration. You may feel helpless in the face of your loved one’s symptoms, be worried about the stigma of schizophrenia, or confused and embarrassed by strange behaviors. You may even be tempted to hide your loved one’s illness from others.
To help someone with schizophrenia, it’s important to:
- Accept the illness and its difficulties
- Don’t buy into the myth that someone with schizophrenia can’t get better or live a meaningful life
- Do your best to help your loved one feel better and enjoy life
- Pay attention to your own needs
- Maintain a sense of humor and remain hopeful
Tips for helping a loved one with schizophrenia
- Educate yourself. Learning about schizophrenia and its treatment will allow you to make informed decisions about how best to cope with symptoms, work toward recovery, and handle setbacks.
- Reduce stress. Stress can cause schizophrenia symptoms to flare up, so it’s important to create a structured and supportive environment for your family member.
- Set realistic expectations. It’s important to be realistic about the challenges of schizophrenia. Help your loved one set and achieve manageable goals, and be patient with the pace of recovery.
- Empower your loved one. Be careful that you’re not taking over and doing things for your loved one that he or she is capable of doing. Support your loved one while still encouraging as much independence as possible.
How to help someone with schizophrenia tip 1: Take care of yourself
Schizophrenia places an incredible amount of stress on family. It can take over your life and burn you out. And if you’re stressed, you’ll make the person with schizophrenia stressed, so it’s important to take care of yourself and find healthy ways to relieve stress.
Connect with others. Social interaction with someone who cares about you is the most effective way to relieve stress. Find someone you can connect with face to face—someone you can talk to for an uninterrupted period of time, someone who will listen without judging or continually being distracted. That person may be a friend, family member, clergy member, or professional therapist.
Get regular exercise. Physical activity reduces stress and releases endorphins, powerful chemicals in your brain that energize your spirits and make you feel good. Aim for 30 minutes of activity on most days or if it’s easier, three 10-minute sessions.
Eat a healthy diet. What you eat has a direct impact on the way you feel. Minimize sugar and refined carbs, foods that quickly lead to a crash in mood and energy. Boost your intake of Omega-3 fatty acids from fatty fish, fish oil, walnuts, and flaxseeds to help improve your focus, energy, and outlook.
Practice acceptance. Instead of dwelling on the unfairness of your loved one’s diagnosis, accept your feelings, even the negative ones. It can make a huge difference in your ability to manage stress and balance your moods. See HelpGuide’s Emotional Intelligence Toolkit for more.
Use relaxation techniques. Techniques such as meditation, deep breathing, yoga, or progressive muscle relaxation can put the brakes on stress and bring your mind and body back into balance.
Seek out joy. Making time for fun isn’t indulgent—it’s necessary. Schedule time into your day for things you enjoy, whether it’s spending time in nature, visiting friends, or reading a good book.
Look after your health. Neglecting your health will only add to the stress in your life. Get enough sleep and stay on top of any medical conditions.
Tip 2: Build your support network
To better support and care for someone with schizophrenia, you need to find help, encouragement, and understanding from others.
Recognize your own limits. Be realistic about the level of support and care you can provide. You can’t do it all, and you won’t be much help to a loved one if you’re exhausted so seek help where you can.
Join a support group. Meeting others who know first-hand what you’re going through can help reduce feelings of isolation and fear. Support groups provide an invaluable venue for the relatives of people with schizophrenia to share experiences, advice, and information.
Turn to trusted friends and family members. Ask loved ones if you can call on them for support. Most people will be flattered by your request.
Seek out new friends. If you don’t feel that you have anyone to turn to, it’s never too late to build new friendships and improve your support network.
Take advantage of support services. Ask your loved one’s doctor or therapist about respite services and other support available in your area, or contact local hospitals and mental health clinics.
Tip 3: Encourage treatment
Often, the first challenge of treatment is convincing the person with schizophrenia to see a doctor. To people experiencing delusions, hallucinations, and paranoia, there is no need for medical intervention because the voices and conspiracy theories are real.
If a loved one with schizophrenia is reluctant to see a doctor, try to:
Provide options. Your loved one may be more willing to see a doctor if he or she can control the situation somewhat. If your relative appears suspicious of you, suggest another person accompany them to the appointment. You can also give your loved one a choice of doctors.
Focus on a particular symptom. Someone with schizophrenia may resist seeing a doctor out of fear of being judged or labeled “crazy.” You can make the doctor less threatening by suggesting a visit in order to deal with a specific symptom such as insomnia or lack of energy.
Tips for supporting a loved one’s schizophrenia treatment
- Seek help right away. Early intervention makes a difference in the course of schizophrenia, so help your loved one find a good doctor and start treatment.
- Encourage independence. Rather than doing everything for your family member, help them develop or relearn skills that will allow for greater independence.
- Be collaborative. When your loved one has a voice in their own treatment, they will be more motivated to work towards recovery.
Tip 4: Monitor medication
Once in treatment, careful monitoring can ensure that your loved one stays on track and gets the most out of medication.
Take side effects seriously. Many people with schizophrenia stop taking their medication because of side effects. Bring any distressing side effects to the attention of the doctor, who may be able to reduce the dose, switch to another antipsychotic, or add medication to counter the side effect.
Encourage your loved one to take medication regularly. Even with side effects under control, some people with schizophrenia refuse medication or have trouble remembering their daily dose. Medication calendars, weekly pillboxes, and timers can help. Two typical antipsychotics, Haldol and Prolixin, are also available as injections given every 2 to 4 weeks instead of a daily pill.
Be careful to avoid drug interactions. Help your loved one avoid any dangerous drug interactions by giving the doctor a complete list of the drugs and supplements they’re taking. Mixing alcohol or illegal drugs with schizophrenia medication is harmful, so talk to the doctor if your relative has a substance abuse problem.
Track your family member’s progress. A journal or diary is a good way to track changes in your family member’s behavior, mood, and other symptoms in response to medication.
Tip 5: Watch for signs of relapse
Stopping medication is the most frequent cause of relapse in schizophrenia, so it’s extremely important that your family member continues to take all medication as directed. While relapse can occur even if a person is taking medication as prescribed, you may be able to prevent a full-blown crisis by recognizing the warning signs and taking immediate steps. Common warning signs of schizophrenia relapse include:
- Social withdrawal
- Deterioration of personal hygiene
- Increasing paranoia
- Confusing or nonsensical speech
- Strange disappearances
If you notice any warning signs of relapse or other indications that your family member’s symptoms of schizophrenia are getting worse, call the doctor right away.
Tip 6: Prepare for crisis situations
Despite your best efforts to prevent relapse, there may be times when your family member’s condition deteriorates rapidly and hospitalization is required to keep your loved one safe. Having an emergency plan ready for an acute psychotic episode will help you handle the crisis safely and quickly. A good emergency plan for someone with schizophrenia includes:
- Emergency contact information for your loved one’s doctor and therapists.
- The address and phone number of the hospital you will go to for psychiatric admission.
- Friends or relatives who will take care of other children or dependents while you deal with the crisis.
It’s also wise to go over the emergency plan with your family member. The crisis situation may be less frightening to your loved one if they know what to expect during an emergency.
10 tips for handling a schizophrenia crisis
- Remember that you cannot reason with acute psychosis
- The person may be terrified by his/her own feelings of loss of control
- Do not express irritation or anger
- Do not shout
- Do not use sarcasm as a weapon
- Decrease distractions (turn off the TV, radio, fluorescent lights that hum, etc.)
- Ask any casual visitors to leave—the fewer people the better
- Avoid direct continuous eye contact
- Avoid touching the person
- Sit down and ask the person to sit down also
Source: World Fellowship for Schizophrenia and Allied Disorders
Tip 7: Explore housing options
Someone with schizophrenia needs a stable, supportive place to live, but finding the right living situation can be challenging.
- Can your family member care for him or herself?
- How much support does he or she need with daily activities?
- Does your family member have a drug or alcohol problem?
- How much treatment supervision does he or she require?
Living with family
Living with family can be a good option for someone with schizophrenia if their family members understand the illness well, have a strong support system of their own, and are able to provide whatever assistance is needed.
At-home arrangements are less likely to be successful if the person with schizophrenia uses drugs or alcohol, resists taking medication, or is aggressive or uncooperative.
|Choosing the Right Housing Option for Someone with Schizophrenia|
Adapted from : Schizophrenia: A Handbook For Families, Health Canada
|Living with family works best if:|
|Living with family is not advised if:|
Try not to feel guilty if you are unequipped to house someone with schizophrenia. If you can’t look after your own needs or those of other family members while caring for your loved one, they will be better off elsewhere.
Residential options outside the family home
If an at-home living arrangement isn’t the right fit, explore the residential facilities in your community.
Options in your area may include:
Residential treatment facilities or 24-hour care homes – A more structured living environment for those requiring greater assistance or suffering an acute psychotic episode.
Transitional group home – An intensive program that helps individuals transition back into society and avoid relapse after a crisis or hospitalization.
Foster or boarding homes – A group living situation offering a degree of independence, while providing meals and other basic necessities.
Supervised apartments – Residents live alone or share an apartment, with staff members available on-site to provide assistance and support.
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More help for schizophrenia
- Understanding Schizophrenia: Symptoms, Types, Causes, and Early Warning Signs
- Schizophrenia Treatment and Recovery: Getting the Help and Support You Need
- Substance Abuse and Mental Health: Substance Abuse and Co-Occurring Disorders
Resources and references
Schizophrenia help for families
Information for Families: Schizophrenia (PDF) – Tips on how communicate with a schizophrenic person and how to look after your own well-being. (World Fellowship for Schizophrenia and Allied Disorders)
Schizophrenia: The Journey to Recovery (PDF) – A consumer and family guide to schizophrenia assessment and treatment. (Schizophrenia Society of Canada)
Dealing with Unusual Thoughts and Behaviors (PDF) – Fact sheet from the U.K.-based National Schizophrenia Fellowship on coping with the symptoms and behaviors of schizophrenia in a loved one. (Rethink)
Finding schizophrenia services and support in the U.S.
Find Your State and Local NAMI – Locate the nearest branch of the National Alliance on Mental Illness, an organization that offers support, education, and referrals for people coping with mental illness. You can also call the toll free HelpLine at 1-800-950-NAMI (6264).
NAMI Programs – Directory of education, training, and support programs for the caregivers of people with mental illness. (National Alliance on Mental Illness)
Finding schizophrenia services and support in other countries
Rethink: Schizophrenia offers a helpline (0300 5000 927) and information on support and services in the UK.
Sane Australia offers a helpline (1800 18 7263) and online advice and referrals to support agencies in Australia.
Schizophrenia Society of Canada offers links to regional societies in Canada that offer helplines and local programs and services.
Medical coverage for schizophrenia
Social Security Benefits – Describes the process of applying for social security benefits and what can be done if benefits are turned down initially. (National Alliance on Mental Illness)
Health Insurance and Mental Health Services – Learn about mental health coverage under the Affordable Care Act. (MentalHealth.gov)
Medicare and Your Mental Health Benefits (PDF) – A guide to the mental health services that are covered under Medicare. (Medicare.gov)
Housing options for people with schizophrenia
Finding a Good Residential Option for Someone with Severe Mental Illness – Provides suggestions for choosing the right living arrangement for a family member with schizophrenia. (Schizophrenia.com)
Moving On: Federal Programs to Assist Transition-Age Youth with Serious Mental Health Conditions (PDF) – A collection of fact sheets on U.S. government programs available to help young people with mental illness. (Bazelon Center for Mental Health Law)
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